Wednesday Oct 11, 2023
The Journey that Sparked ’The Positive Gene Podcast’
The Positive Gene Podcast
Welcome to The Positive Gene Podcast, where we empower those navigating hereditary cancer risks with hope and optimism. Hosted by Sara Kavanaugh, a hereditary cancer previvor living with Lynch Syndrome (MSH6) and CHEK2 genetic mutations, this show offers a unique perspective on proactive well-being. Drawing on her own experiences and work as an advocate for FORCE (Facing Our Risk of Cancer Empowered), Sara bridges the gap between scientific knowledge and the realities of life as a previvor. Through engaging discussions with experts, advocates, and fellow previvors and survivors, Sara simplifies the complexities of hereditary risk and provides insights that empower listeners to face challenges with confidence. With a background as a communications expert and storyteller, she creates a space where education meets inspiration, and science meets everyday life. Whether you’re managing genetic risk, supporting a loved one, or simply curious about how genetics shape our health, this is your space to discover the transformative power of awareness and prevention. Subscribe now for a dose of empowerment in every episode. Visit www.positivegenepodcast.com to read the podcast blog, explore resources, or book Sara for your next speaking engagement!
Listen on:
Episodes
Episodes
Wednesday Oct 04, 2023
Wednesday Oct 04, 2023
SHOW NOTES
In today's episode, we journey through the less-trodden paths of a genetic diagnosis. With a blend of personal stories and expert insights, we touch upon the emotional, financial, and social facets that come along with it. Whether it's understanding insurance intricacies or navigating family conversations, our aim is to bring clarity and comfort. Remember, every challenge brings an opportunity to grow and learn. So, come along as we empower ourselves with knowledge, community support, and a sprinkle of positivity.
Life Insurance Implications: The complex relationship between genetic diagnoses and insurance coverage, highlighting the specifics of GINA and its protective measures.
Family Testing and Emotional Implications: The myriad emotions, from guilt to relief, that come with the decision to undergo genetic testing and the subsequent revelation to family members.
Overwhelming Nature of Screenings: The emotional and financial challenges of regular screenings, and strategies to cope with the anxiety of awaiting results.
Family Planning After Diagnosis: Reflecting on the profound considerations and decisions concerning family planning and potential genetic implications for offspring.
Overcoming the Feeling of Isolation: The personal journey from feeling isolated post-diagnosis to finding a supportive community and the strength to share one's experience.
IMPORTANT: I am not a medical professional. Everything shared here is based on my personal experience and journey with hereditary cancer syndromes. Always consult with your healthcare providers about your personal health concerns.
Stay informed, stay empowered, and remember – you're not alone on this journey.
Thank you for allowing me into this space! So grateful for you.
Links referenced in this episode:
www.sarakavanaugh.com
www.facingourrisk.org
https://www.facingourrisk.org/info/hereditary-cancer-and-genetic-testing/sharing-with-family/importance-of-sharing
https://www.cdc.gov/cancer/breast/young_women/bringyourbrave/hereditary_breast_cancer/talking-family-history.htm
https://www.ashg.org/advocacy/gina/
https://www.facingourrisk.org/support
https://www.breastcancer.org/genetic-testing/family-relationships
https://www.jou.ufl.edu/wp-content/uploads/2019/08/Dean-Fisher-2019.pdf
Thanks for listening! Stay tuned for more insights in upcoming episodes!
Thursday Sep 28, 2023
Thursday Sep 28, 2023
The Positive Gene Podcast Episode #2: Lessons Learned While Navigating Genetic Testing for Hereditary Cancer Genes
Show Notes
Introduction:
Introduction to genetic testing for hereditary cancer genes.
An overview of the R.E.A.D.Y. Framework.
Disclaimer:
Insights are personal, not medical advice.
Only 5-10% of cancers are due to inherited gene defects.
BEFORE TESTING: Recognize Risks
Importance of understanding potential genetic risks.
Resources: facingourrisk.org and cancer.org.
DURING TESTING: Educate & Engage
Decoding test complexities and connecting with specialists.
Importance of online community support.
DURING TESTING: Act Proactively
Emphasis on lifestyle changes and early detection.
Guidelines for inherited mutations at FORCE's website.
AFTER TESTING: Discuss & Decide & YOU Have The Power
Collaborating with professionals for a tailored plan.
Advocating for oneself in the medical journey.
IMPORTANT: I am not a medical professional. Everything shared here is based on my personal experience and journey with hereditary cancer syndromes. Always consult with your healthcare providers about your personal health concerns.
Stay informed, stay empowered, and remember – you're not alone on this journey.
Thank you for allowing me into this space! So grateful for you.
Links Mentioned:
www.sarakavanaugh.com
Sara's Blog - Ep 1 Transcript
www.facingourrisk.org (FORCE - Facing Hereditary Cancer Empowered)
www.cancer.org (American Cancer Society)
FORCE’s hereditary cancer genes and risks)
FORCE's Signs of Inherited Mutations
FORCE’s “I’ve tested positive, now what?”
Stay tuned for more insights in upcoming episodes!
Monday Sep 25, 2023
Monday Sep 25, 2023
Welcome! Join Sara Kavanaugh on The Positive Gene Podcast as we navigate hereditary cancer risks with clarity and optimism from the patient perspective. We know navigating the landscape of hereditary cancer risks can feel overwhelming. But worry not! Through engaging discussions and captivating topics, we'll demystify the world of life with hereditary cancer risk, unraveling its complexities in a way that's both accessible and informative. Thanks for listening!
IMPORTANT: I am not a medical professional. Everything shared here is based on my personal experience and journey with hereditary cancer syndromes. Always consult with your healthcare providers about your personal health concerns.
Stay informed, stay empowered, and remember – you're not alone on this journey.
Thank you for allowing me into this space! So grateful for you.
Follow along or share your story on Sara's blog at www.sarakavanaugh.com/podcast