The Positive Gene Podcast

Five Ways to Support Loved Ones Through Hereditary Cancer Choices

The Positive Gene Podcast Episode: “Five Ways to Support Loved Ones Through Hereditary Cancer Choices”
Explore the intricacies of hereditary cancer mutations and the daunting decisions they can pose with host Sara Kavanaugh. Tune in to learn how to navigate these tough conversations, be it as the decision-maker or a supportive loved one.
Understand the Why: Recognize the emotional toll of family health history, prior battles with cancer, and the anxiety of looming risks.
Listen More, Speak Less: Offering a patient ear can be more therapeutic than a plethora of advice.
Educate Yourself: Dive into reputable resources like FORCE and the American Cancer Society to grasp the complexity of hereditary cancer mutations.
Kindness Over Curiosity: Approach conversations with genuine concern and empathy, putting personal opinions aside.
Respect is Key: Every medical decision is deeply personal, and the need of the hour is understanding and support.
Links referenced in this episode:  
www.sarakavanaugh.com
www.facingourrisk.org (FORCE - Facing our Risk of Cancer Empowered)
www.cancer.org (American Cancer Society)

Reclaiming Control: Defining Empowerment in the Wake of Hereditary Cancer Risk

In this episode, join Sara as we explore empowerment for those living with hereditary cancer risks. Discovering a hereditary cancer mutation can be a profound moment, raising questions, fears, and even opportunities. As we delve deep, we unravel the different facets of empowerment, from awareness and education to active participation in one's health journey. Through personal anecdotes and evidence-backed insights, we shed light on how to navigate the unique challenges of this journey, always advocating for one's well-being and health.
Call-to-Action Items:
Information: Seek knowledge and clarity.
Access: Overcome digital divides and access challenges.
Engagement: Stay proactive with medical consultations.
Agency: Take charge of your health decisions.
Also, recognize the power of belonging to a spiritual community and embrace prayer and reflection to foster a sense of control and alleviate anxiety.
Stay informed, stay empowered, and remember – you're not alone on this journey. 
Thank you for allowing me into this space! So grateful for you.
Links referenced in this episode: 
Sara’s Website:  www.sarakavanaugh.com
FORCE - Facing Our Risk Empowered:  www.facingourrisk.org
American Cancer Society:  www.cancer.org
Mayo Clinic’s Cancer Blog: www.cancerblog.mayoclinic.org
John’s Hopkins: https://www.hopkinsmedicine.org/kimmel-cancer-center/clinical-cancer-genetics
FORCE’s Support Page:Patient Advocate Foundation: https://www.patientadvocate.org/connect-with-services/case-management-services-and-medcarelines/
Medicare Rights Center: https://www.medicarerights.org/about
Insurance Appeals: https://www.facingourrisk.org/support/insurance-paying-for-care/health-insurance-appeals/overview

The Journey that Sparked ’The Positive Gene Podcast’

In this revealing episode of The Positive Gene Podcast, host Sara Kavanaugh offers an intimate look into her personal journey with hereditary cancer syndromes. Drawing from her own experiences—from her initial diagnosis and emotional challenges to the strength she found in faith and community—Sara provides listeners with insights into navigating the complexities of genetic awareness and proactive health decisions.
 
Please Note: This episode contains discussions of personal faith and spirituality, which have been vital to my recovery journey. While these themes are deeply personal and integral to my story, listeners' diverse perspectives are welcomed and respected.
 
Episode Overview:
Introduction to Sara's personal genetic journey.
The impact and realization of hereditary cancer syndromes.
Emotional challenges, decisions, and surgeries.
The role of faith and community support in the face of adversity.
Sara's commitment to regular medical screenings.
The profound influence of Sara's church community on her journey.
Embracing empowerment through decisive health actions.
Proactive steps for managing hereditary cancer risk.
IMPORTANT: I am not a medical professional. Everything shared here is based on my personal experience and journey with hereditary cancer syndromes. Always consult with your healthcare providers about your personal health concerns.
Stay informed, stay empowered, and remember – you're not alone on this journey. 
Thank you for allowing me into this space! So grateful for you.
Links Mentioned in the Podcast:
www.sarakavanaugh.com
www.facingourrisk.org (FORCE - Facing our Risk of Cancer Empowered)
nsgc.org - National Society of Genetic Counselors 
thyroid.org - American Thyroid Association
Thanks for listening!  Stay tuned for more insights in upcoming episodes!

Confronting Five Hidden Hurdles After a Genetic Diagnosis

SHOW NOTES
In today's episode, we journey through the less-trodden paths of a genetic diagnosis. With a blend of personal stories and expert insights, we touch upon the emotional, financial, and social facets that come along with it. Whether it's understanding insurance intricacies or navigating family conversations, our aim is to bring clarity and comfort. Remember, every challenge brings an opportunity to grow and learn. So, come along as we empower ourselves with knowledge, community support, and a sprinkle of positivity.
Life Insurance Implications: The complex relationship between genetic diagnoses and insurance coverage, highlighting the specifics of GINA and its protective measures.
Family Testing and Emotional Implications: The myriad emotions, from guilt to relief, that come with the decision to undergo genetic testing and the subsequent revelation to family members.
Overwhelming Nature of Screenings: The emotional and financial challenges of regular screenings, and strategies to cope with the anxiety of awaiting results.
Family Planning After Diagnosis: Reflecting on the profound considerations and decisions concerning family planning and potential genetic implications for offspring.
Overcoming the Feeling of Isolation: The personal journey from feeling isolated post-diagnosis to finding a supportive community and the strength to share one's experience.
IMPORTANT: I am not a medical professional.  Everything shared here is based on my personal experience and journey with hereditary cancer syndromes. Always consult with your healthcare providers about your personal health concerns.
Stay informed, stay empowered, and remember – you're not alone on this journey. 
Thank you for allowing me into this space! So grateful for you.
Links referenced in this episode:  
www.sarakavanaugh.com
www.facingourrisk.org 
https://www.facingourrisk.org/info/hereditary-cancer-and-genetic-testing/sharing-with-family/importance-of-sharing
https://www.cdc.gov/cancer/breast/young_women/bringyourbrave/hereditary_breast_cancer/talking-family-history.htm
https://www.ashg.org/advocacy/gina/
https://www.facingourrisk.org/support
https://www.breastcancer.org/genetic-testing/family-relationships
https://www.jou.ufl.edu/wp-content/uploads/2019/08/Dean-Fisher-2019.pdf
Thanks for listening!  Stay tuned for more insights in upcoming episodes!
 

Lessons Learned While Navigating Genetic Testing for Hereditary Cancer Genes

The Positive Gene Podcast Episode #2: Lessons Learned While Navigating Genetic Testing for Hereditary Cancer Genes
Show Notes
Introduction:
Introduction to genetic testing for hereditary cancer genes.
An overview of the R.E.A.D.Y. Framework.
Disclaimer:
Insights are personal, not medical advice.
Only 5-10% of cancers are due to inherited gene defects.
BEFORE TESTING: Recognize Risks
Importance of understanding potential genetic risks.
Resources: facingourrisk.org and cancer.org.
DURING TESTING: Educate & Engage
Decoding test complexities and connecting with specialists.
Importance of online community support.
DURING TESTING: Act Proactively
Emphasis on lifestyle changes and early detection.
Guidelines for inherited mutations at FORCE's website.
AFTER TESTING: Discuss & Decide & YOU Have The Power
Collaborating with professionals for a tailored plan.
Advocating for oneself in the medical journey.
IMPORTANT: I am not a medical professional.  Everything shared here is based on my personal experience and journey with hereditary cancer syndromes. Always consult with your healthcare providers about your personal health concerns.
Stay informed, stay empowered, and remember – you're not alone on this journey. 
Thank you for allowing me into this space! So grateful for you.
Links Mentioned:
www.sarakavanaugh.com
Sara's Blog - Ep 1 Transcript
www.facingourrisk.org (FORCE - Facing Hereditary Cancer Empowered)
www.cancer.org (American Cancer Society)
FORCE’s hereditary cancer genes and risks)
FORCE's Signs of Inherited Mutations
FORCE’s “I’ve tested positive, now what?”
Stay tuned for more insights in upcoming episodes!

The Positive Gene Podcast - Trailer

Welcome!  Join Sara Kavanaugh on The Positive Gene Podcast as we navigate hereditary cancer risks with clarity and optimism from the patient perspective. We know navigating the landscape of hereditary cancer risks can feel overwhelming.  But worry not! Through engaging discussions and captivating topics, we'll demystify the world of life with hereditary cancer risk, unraveling its complexities in a way that's both accessible and informative.  Thanks for listening!
IMPORTANT: I am not a medical professional.  Everything shared here is based on my personal experience and journey with hereditary cancer syndromes. Always consult with your healthcare providers about your personal health concerns.
Stay informed, stay empowered, and remember – you're not alone on this journey. 
Thank you for allowing me into this space! So grateful for you.
Follow along or share your story on Sara's blog at www.sarakavanaugh.com/podcast