SHOW NOTES
In today's episode, we journey through the less-trodden paths of a genetic diagnosis. With a blend of personal stories and expert insights, we touch upon the emotional, financial, and social facets that come along with it. Whether it's understanding insurance intricacies or navigating family conversations, our aim is to bring clarity and comfort. Remember, every challenge brings an opportunity to grow and learn. So, come along as we empower ourselves with knowledge, community support, and a sprinkle of positivity.
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Life Insurance Implications: The complex relationship between genetic diagnoses and insurance coverage, highlighting the specifics of GINA and its protective measures.
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Family Testing and Emotional Implications: The myriad emotions, from guilt to relief, that come with the decision to undergo genetic testing and the subsequent revelation to family members.
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Overwhelming Nature of Screenings: The emotional and financial challenges of regular screenings, and strategies to cope with the anxiety of awaiting results.
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Family Planning After Diagnosis: Reflecting on the profound considerations and decisions concerning family planning and potential genetic implications for offspring.
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Overcoming the Feeling of Isolation: The personal journey from feeling isolated post-diagnosis to finding a supportive community and the strength to share one's experience.
IMPORTANT: I am not a medical professional. Everything shared here is based on my personal experience and journey with hereditary cancer syndromes. Always consult with your healthcare providers about your personal health concerns.
Stay informed, stay empowered, and remember – you're not alone on this journey.
Thank you for allowing me into this space! So grateful for you.
Links referenced in this episode:
- www.sarakavanaugh.com
- www.facingourrisk.org
- https://www.facingourrisk.org/info/hereditary-cancer-and-genetic-testing/sharing-with-family/importance-of-sharing
- https://www.cdc.gov/cancer/breast/young_women/bringyourbrave/hereditary_breast_cancer/talking-family-history.htm
- https://www.ashg.org/advocacy/gina/
- https://www.facingourrisk.org/support
- https://www.breastcancer.org/genetic-testing/family-relationships
- https://www.jou.ufl.edu/wp-content/uploads/2019/08/Dean-Fisher-2019.pdf
Thanks for listening! Stay tuned for more insights in upcoming episodes!
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